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Falling Down and Getting Up

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--This entry is dedicated Katy Dagenais, Colleen Baliga in Physical Therapy  and Debbie Peters in Cognitive Rehabilitation. Image from https://movementum.co.uk/journal/falling When I first got back after having my stroke I was never really concerned that I would fall. It had never really crossed my mind. From time to time I watched other patients at CNS go up and down the stairs and from time to time I would try the stairs.   I wanted to walk very badly.  My driver Laura could attest to this fact. CNS was very careful with my recovery.  They never pushed me to if I was not ready, but I was not concerned with falling. When I first had my stroke I wanted to walk--I wanted to walk so bad that I shoved my walker in a corner and did what Bruce and Gerald refer to as wall surfing. If there was a wall I could lean on I was glued to it.  Every time Bruce and Gerald would walk down the hallway I did not  want them to catch me leaning on a wall, so I straig...

Anniversary Poem

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The Design of Our Marriage We come to another milestone, Families and friends crowd round us In celebration of the sapling we have grown.   The foundation we laid together shows That brick on brick of family Melds each moment as husband and wife.   Through year on year of love, lockdown And of strife and family trials, We face the frontier that now stands ahead.   Though we grow stronger in patience and in trust And friends and family too, despite A world that  tries to damage both of us.   In all things we are stronger, In a world that moves against us. We bloom together despite these hardships.   Now I call your name and you recall back mine— We brave a world that forces wind against our base And cannot budge us strictly by design. Our Anniversary–Today November 23rd Already now another year has come and we have passed five years–this very day. Now five whole years may seem a lot to some– It is but just a moment...

My Independence (An Independent Day)

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It is Friday, and I am already tired. Normally I would be winded or even slightly ready for a weekend.   Today was my first independent day ever.   During the course of the day I was given a list of things to do.   Each of the things was designed to keep me busy and to spur me onward by making sure I used good time management. The hard part was I had to stay organized and finish the list of tasks before I left at two o'clock. The hard part was I had to track down my therapists, and they had to sign off on my work. Which was difficult as some of them were not here today. First I had to plan my day out.  The list of activities were also timed meaning I had to take a lunch and had to do them at certain times of the day. Time management was definitely part of my schedule--and I had to be organized.  So I started earnestly.  I went from task ti task doing them in places where people could see me, specifically tasks where I needed to do 15 minutes ...

Lessons from the Golden Girls

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You can learn so much from the Golden Girls. There is a lot to learning about a brain injury.  From my time at the Center, I have learned much about my fellow patients in many new ways that help me know them more intimately. Every day that I go to the center I meet a patients who teach me something important about myself and brain injury. The person who taught me the most was Mike Greg.  Mike Greg who taught me patience and kindness.   Mike taught me a lot about stroke patients.  He taught me about filters and patients who lose the ability to filter the things they say.   There were many times I understood better but it was not until my mandatory four week vacation that I began to watch or rather binge the Golden Girls, and I noticed that Sophia, (played by Estelle Getty,) the oldest golden girl, mentioned in the pilot had a stroke.   It was only mentioned occasionally at first and only in the pilot. Now, I watched the series for many years, but...

Skip--My Inspiration

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There are many things I have learned while at the clinic.  Just talking to my driver is an education in itself. Of the many things I learned--therapy can do many things for you--but you have to want it. Because if you are not willing to fight--if you do not want it--if you give only the minimal effort--or if you phone it in--there is nothing the clinic will change for you. And I mean it--you can come every day but without the drive to do what needs to be done you are wasting the precious insurance money that allows you to be here. There are many people I have met here--one such person is Skip. And he is a shining example of this amazing place. My driver told my about Skip who I learned was a lawyer.  He had previously told me that he wanted to walk out of here using a cane. We often shared a belief that we will walk out of here together--no cane--at least that is what I believe. Skip is truly the x-factor here at the clinic.  He works hard in a that makes of proud to know...

Bruce and Gerald Part 2

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Starting this entry is very hard.  To quote Allison Curbo there are several people here at the center who deserve a level of praise. As I have been at the Center for Neuro Skills since April I have done testing under numerous therapists and each of them have helped me in ways that were unimaginable. Two such therapists are Bruce and Gerald.  Each day I have come to the Clinic was incomplete without a sighting of one or either the other. Today is no different. As I walk around the clinic for my daily routine I can hear Bruce's voice booming from somewhere inside the Center,  His voice is infectious and it fills me and many patients with a sense of joy. Just yesterday I was doing health club and Gerald commented on my beard saying he wanted to see me with a trimmed beard and haircut.  It was a kind comment--the sort given by men who admire each other. In ways there are many reasons I return to the clinic and give my all in the trek to get better.  Two of the best ...

A Brief Survival Guide

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A Brief Survival Guide is dedicated to the patients of CNS A Brief Survival Guide as dictated to me by the patients of CNS. During my time at CNS I learned a few of the many idiosyncratic terms of going here.  Many of these terms are both humorous and enlightening as one of the newbies to the Center.   What follows are the many terms I learned and the patients who taught them to me. The ARM -- The Auditory Rehab ilitation Module.  Many times the Arm is brought up to give a break to the many patients who a struggling to regain and struggling to renew their cognitive faculties on a daily basis here at the Center. Arm Bike --the bane of the OT gym and workroom. The dreaded bike which at first was difficult to use.  But after a while you get to know the bike intimately and your ability to pedal gets longer. The Perfect Excuse --The excuse we all have that we easily laugh at when times are hard.  We often refer to our brain injury or stroke any time we need to....